I’m struggling really really badly!! Im sorry this’s a long rant but Ive cried myself sick today & need to get this out i guess.
I don’t know if cirs is causing my symptoms or my neck injury or both. I’m in such excruciating burning shooting nerve pain all over my body.
I was wondering if anyone else w/ CIRS deals w/ symptoms like this ?? I’m literally in so much burning pain I don’t know if I’m strong enough for this. Lighting shoots down my spine constantly into all my limbs like I’m hooked up to an electric chair. It shoots down my spine into my arms & legs with every heartbeat. And My spine has its own heartbeat on top of that. It’s crazy. I have pretty severe blurry vision. My head’s throbbing, my ears ring. The pains violent I’m physically rumbling.
I’ve contacted a few docs trying to get on something for it bc i can’t function. I can’t think, drive or get out of bed. I’m really scared. Im scared for my future. Scared for my boys. I feel so alone in this. I’m 43 & terrified I’m gonna end up in a wheelchair slobbering on myself. There’s a lot going on but We remediated our home. Our scores were low but maybe not low enough ? I was told by my shoemaker certified doctors arnp that my symptoms are more severe than CIRS & she thinks maybe I have a neurodegenerative disease but all my MRI’s show is some structural issues no lesions. Everything I read ab CIRS says it can cause severe burning nerve pain. I’m having surgery soon. The docs gonna do total disc replacements in c 5 & 6. I’m not sure if that’s the cause of all this or if it’s CIRS. I’m just scared & so confused right now. I’m embarrassing myself posting this but I really feel alone. I’ve been living w/ this pain & it’s gotten worse w/ time. I don’t know if I’m gonna get to the other side of this. The last few yrs I’ve been in bed a lot battling this chronic pain & I don’t know what’s causing it or if I’m being misdiagnosed or what. Sorry for the rant. I don’t post a lot on here bc I don’t really get any responses from ppl & I don’t know why that is but I really needed to get this off my chest. All the nerves in my body are going nuts electrocuting me. I’m so tired of feeling like I’m dying. It’s gotten so severe it’s swallowed all normalcy in my life. I keep thinking maybe this’s something serious they’re missing bc it’s that bad. I’m lost & scared to have surgery on my spine in this condition. Im not on binders or being treated for CIRS. Not sure if spine surgery’s a good idea but I’m in so much pain I’m desperate for any kind of relief. Anyone else w/ CIRS in severe pain ?? I’m sorry I’m just in a bad place right now.