u/NewWishbone3698

I just started experiencing symptoms last week and am in the process of getting diagnosed. My neurologist has ordered a brain and neck mri for next week but she is leaning towards atypical TN. Because I’m not formally diagnosed I don’t have a treatment plan in place so I’m just bare knuckling the symptoms right now (constant aches, stiff jaw, facial numbness, occasional zaps, teeth pain). I have a trip planned for next weekend but idk if I can go feeling like this.

How do you live your life and enjoy things in spite of the pain? It’s all I can think about right now.

How fast did carbamazepine work for your atypical TN?

supposed to travel to Chicago next week but this whole Hanta Virus thing is starting to freak me out

i’m supposed to travel from Tulsa Oklahoma to Chicago Illinois next week and I’m really nervous about the flight because of this hantavirus thing. Is anybody else out there nervous about traveling and thinking about canceling upcoming plans?

I just started experiencing the ache and numbness after some nerve zaps in my teeth 2 nights ago. I am meeting with my neurologist soon but am really scared. I know this is called the suicide disease… I already have chronic pain from fibromyalgia and herniated discs. Can i hope for any quality of life or is my life basically over now?

Last night I had what felt like electric nerve zaps in my bottom teeth on the left side. I couldn’t tell which tooth it was coming from but it was in the area where I have had two root canals and still experience some ligament soreness so figured it was from there. I had about 5 different zaps over the course of twenty minutes and they all lasted a second each. I put some ice on my cheek and that seemed to stop it but afterwards my gum area and teeth continued to ache. This morning I woke up with the same ache that spread into my cheek and up into my ear and now I feel a bit of numbness there. My smile looks normal and nothing really seems to trigger the pain, it’s just kind of there. Although I am a teeth grinder (I sleep with a mouth guard) and do have some teeth sensitivity from that. Does this sound like TN to anyone?