I wanted to share something personal and also ask for advice. Both of my parents have been diagnosed with Alzheimer’s in the past 6 years (Mom in 2020 and Dad in 2025). For many of those years my sister and I were serving as the primary caretakers for our parents until it got to a point where we had no other choice but to hire a professional caregiver to help our family. As their memory started to progressively decline, the hardest part wasn’t just the diagnosis— it was everything that came after.
The repeated conversations.
The confusion. The Alzheimer’s related aggression.
Trying to keep track of medications, routines, and behavior changes. Sometimes leaving the house and getting lost.
It constantly felt like we were reacting instead of actually managing anything.
And honestly, it created tension. We’d have conversations they didn’t remember, and it would turn into arguments where we looked like the bad guys and a lot of other difficult moments. We ended up piecing together a system ourselves, but it felt messy and exhausting.
I’ve started working on something (very early) to help caregivers better organize all of this—tracking routines, behaviors, providing a clearer picture of what’s going on day to day (doctor’s appts, important events, tasks that need to be completed, etc.), giving guidance and support in times of high stress, and more, since a lot of us are caring for a loved one diagnosed with Alzheimer’s for the very first time.
I’m not here to promote anything, I genuinely just want to learn from people who are going through this.
If you’re open to sharing:
What’s been the hardest part for you?
Is there anything you wish existed to make caregiving easier?
Do you/your family have a current system in place to help you with your caretaking responsibilities/keep everything organized?
If there was one feature in a tool like this that you would use daily that would make your role as caretaker much easier what would it be?
If anyone is interested in what I’m building or wants early access, I’m happy to share more, but mostly just here to connect learn.