u/Neurotic_and_Divine

Marked NSFW because my room is red/a lot to take in visually.

1. Bed buckets: One soft fabric storage cube for food (and honestly sometimes clutter), one hard plastic storage cubby for "this doesn't belong in bed but I do not have the spoons to put it where it does belong", and one soft storage caddy for nutritional shakes + as needed sleepy medications. I just used what I already had for storage bins, thus it isn't aesthetically pleasing.
2. Bed backpack: I keep a medium sized backpack in bed, basically for all of my self-care so I can do it in bed/without standing. It contains the following:
   • Body wipes
   • Face wipes
   • Skincare items (in a makeup bag)
   • Toothbrush + toothpaste (I brush my teeth in bed, then spit into my trashcan next to bed)
   • 2 week's worth of med planners
   • Hairbrush
   • Deoderant
3. Bed desk + PC: I bought an over-bed hospital table, a clamp-style monitor arm, and a long ass HDMI cable as well as one really long extension cord. This allowed me to use my desktop in bed, which is where I spend 99% of my time. Biggest quality of life upgrade I could ever recommend, costed me like $80 for initial setup. Eventually added mini upgrades such as a clamp fan, and a clamp extension cord desk thingy so I can directly plug in phone chargers etc on my desk.
4. Spinning organizer on bed-side table: HUGE help. In it I keep the following:
   • Hair ties
   • Fan remote control, AC remote control
   • Spray leave-in conditioner (so I don't have to attempt conditioning my hair in the shower but can still get the benefits of conditioner)
   • Cream leave-in conditioner (if I really need some extra conditioner)
   • Cat grooming brush
   • Nail grooming kit/a mini kit of nail clippers, nail files, tweezers, etc.
   • Hand lotion + eczema lotion
   • Candles on top to weigh it down/make it more sturdy.
5. Bed side table with actual drawers: In it I keep:
   • Bucket with my cat's inhaler setup/treats
   • Charger cables
   • Makeup for the rare days I have spoons for it
   • Cleaning supplies in second drawer
   • Misc/random stuff in third (I organize it based on which items I use the most. High usage gets priority for top drawer).
6. Pegboard wall storage organizers: I have one kit divided into two spaces. One is next to my bed where my buckets are, one is next to my bed where my spinning organizer is.
   • The one directly next to where I sit has high-use items as well - headphones, toilet paper I use as tissues, and sentimental items on one small shelf. I hang my mini trash can here, and always put a bag in since I brush my teeth in bed and spit in the can. Hanging the trash can means I have space below it, which I use for a gallon water jug and my medicine box.
   • Second pegboard has my facial mirror, a shelf with tongue scrapers and flossers.
7. Not pictured/laundry system: I have a laundry bin that I keep clean clothes in, and a laundry bag that I keep dirty clothing in. The bag makes it way easier to carry laundry to and from the washing machine, though I get help for switching it to the dryer. I keep both bag + bin in the bathroom closet, so when I go to pee first thing in the morning, I can change clothing while sitting. I tried for so many months to keep up with an actual dresser/hanging clothes and all that, it just takes too many spoons. Laundry is hard enough.
8. Not pictured/mini kitchen setup: I have a mini fridge and microwave that I am moving into my room, currently across the hall. If I didn't have this literally a short walk away, I wouldn't be eating solids at all.

I get help with vacuuming my room, switching my laundry over, doing cat litter, and cleaning the shower. Everything else, I do. I have two cats, one of which is asthmatic and needs inhalers twice daily. I wear a cheap health watch (Samsung Fit3) and sit down if my HR gets around 115-120.

I live with family, and receive SSI/SSDI due to psych co-morbidities. They do take me to the rare in-person doctor's appointment, or my annual vet visits for my cats.

All groceries are delivered to my door/I have Walmart+. If you qualify for SNAP or Medicaid, you can get Walmart+ for half off, which gives free delivery. Same thing with Amazon Prime. I hate these businesses, but I am too sick to use a different service.

I get my meds delivered via ExpressScripts (only place I know of that will deliver all schedules of controlled medications), and if I need something short-term I have family pick it up from the pharmacy.

I have Medicare due to being on disability for 3+ years, and am currently fighting for Medicaid. My state does cover my Medicare co-pays, though. I do all healthcare via telehealth, and go in-person only for tests.

Let me know if you have any questions or want advice on a particular thing. Hoping this helps someone! <3