I don’t even know how to start this post. A few days ago our world just collapsed. My father was diagnosed with primary cardiac angiosarcoma, which is a cancer of the heart itself. The doctors told us it’s one of the rarest cancers there is, something like 0.03% of people ever get it primarily in the heart
The tumor is 8cm or bigger and it’s sitting on his right atrium. Because of the size and where it is they told us surgery isn’t possible. It has also spread to his chest. The prognosis they gave us is 3 to 6 months and I genuinely cannot read those words without falling apart.
He is our entire world. Both my parents don’t actually know the full picture yet and right now I’m carrying all of this and my siblings. I don’t know how to have that conversation. I don’t know what comes after it. I don’t know anything right now.
I’m not here looking for statistics. I’ve already spent too many hours reading those tonight. What I’m really looking for is whether anyone here has actually walked this road. , Are there people who beat the odds? Stories of someone who made it further than the doctors said? Any treatments or clinical trials or second opinions that made a difference?
I know hope has to be realistic. I’m not asking for anyone to tell me everything will be fine. I just need to know that people have faced this and found something on the other side. A little more time. A little more life.