has anyone experienced a worsening of the invisible rock problem lately? it was always while driving for me but today the blue zone killed me because an enormous invisible rock was blocking my path and no matter how hard i tried i could not get around it.
is this happening more to anyone else? it wasn’t this common up until about the last week or so.
I’m a 39 year old tourette with severe Ts with swearing, gestures and repeating myself and others. I am not only medication resistant my body rejects most medication with an onslaught of terrible side effects.
It was worse as a child but as an adult with a new diagnosis of PTSD the Ts became so severe it ostracized me from my community and family, due to family in another state dealing with drug issues, I went through some trauma and moved to a very small town.
I wanted to share what has worked for me. I don’t share with most as I am a very closed person. I don’t want people to take advantage of me.
My neurologist refer me to a Psych in a big city and he started me on ketamine troches last fall. My complete diagnosis is OCD, ADD, PTSD, Panic Attack Disorder, Generalized Anxiety, and severe TS. Ketamine can not be taken by those with schizophrenia or type 2 Bipolar.
while experimental for Tourette’s, this was an overnight god send. and I’m going to be very blunt here. I was at my wits end, I literally gave myself until the new years of 2026 to find a medicine that would work or I wasn’t going to deal with it anymore. it was not worth it, my life was miserable. I could not hold on much longer.
this has given me quality of life, and most importantly control over my brain. the biggest difference was the negative, constant looping thoughts were immediately replaced by an empty hallway in my brain, so to speak. my brain which was constantly whirring was quiet. I remember calling my mom the first week and crying in happiness.
over the past year I have regained even more control of my brain, and I’d say I have 90% control. it has helped all my tics, although I am noticibly worse when I am waxing and hormonal, but the biggest difference is the fact that the doctor thinks I am autistic (I never went to testing because I personally don’t think a diagnosis of autism will change anything) but I had daily rages. I would be attempting to do something which required focus, work, chores, painting, crafts anything. and then BOOM explode yell kick throw things. I thought I was a terrible person, but when eventually this stopped with the ketamine and now I know where my limit is. it’s difficult to describe but say, if I’m painting my walls, I feel a meter build up, in my brain. and I know when to put that paint brush down or I know I’ll start raging. and I am able to put the brush down!
the quality of life has been improved drastically.
I thought I’d share this with anyone who also has found that they’ve gone through entire sheets of paper filled with medication that their body can not tolerate.
the only medication that ever did help was Invega but I had some dangerous side effects, not just massive rapid weight gain. but side effects with thinking that are dangerous and lead me to believe that one should not take hormonal based medication. or at least, I should not.
if anyone has any questions please do ask. I’m an open book. with influencing as it is, I’m thinking of using YouTube as a platform to speak about Tourette’s and my experience.
ketamine changed my life, it saved my life. it’s nothing to trifle with, for sure, especially if you deal with addictions, it’s not for you. it does not pair well with cannabis, they work in two opposite ways and should not be used together.
however the medication is not usually covered by insurance but I only pay $150 a month from a compound pharmacy and it’s shipped to my house after being made especially for me. if anyone out there has given up hope because your Tourette’s is so severe, please ask your psych, many doctors are unwilling to touch this so if your doctor is adamant it’s a bad drug I reccomend finding a psychiatrist experienced with prescribing it. or asking for a referral from your neurologis.
I hope this helps someone. this has been my miracle.