u/MediocreBody388

ECE pain??

Hi everybody..... I've been reading all the posts on this site which I find to be extremely helpful and encouraging. Thank you all for your insights.

My husband has been diagnosed w SCC HPV+16 via FNB of involved lymph nodes, level 2 and 3 in the Rt side of his neck.

Initial U/S in early Feb said mildly enlarged....repeat U/S mid -March said they had grown to 2.3 cm with loss of hilium and cortal thickening. Biopsy end of March confirmed SCC.

Lack of experienced medical resources here in Las Cruces led us to seek treatment and appointments in Albuquerque, 3 hr drive away at the only NIH Cancer Center in New Mexico.

Laryngoscopy by ENT showed no lesions he could see. We go for PET SCAN in a few days to find a source.

My husband has a lot of pain in his neck, shoulder area....spasm like, grabbing, ice pick, twisting....numbness in the area into top of shoulder and right upper chest.....

comes out of nowhere. When it happens , it is so severe, RX's for gabapentin, Norflex, diclofenac help a bit, but relief is hard to maintain after a few hours. Drinking hot coffee somehow helps ease the spasms for awhile.

Did anyone experience pain in the neck area before treatment started? ( Don't know what treatment yet).....he says the pain is getting worse the past 3 weeks since biopsy. Could it be an ECE breaking open?.... I'm at a loss right now. Pain is much worse since we saw initial appt w ENT 3 wks ago. Neck is swollen but soft....no greater Amt. of swelling that I can see since initial symptoms started....

Any comments and thoughts on your experiences are greatly appreciated.

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u/MediocreBody388 — 19 hours ago