Hi guys- so yet again, for the now third opinion I’m seeking, I’ve been told (yet again) I have possible meneires (don’t worry I’m not being crazy over searching for opinions- I’ve genuinely been told by each dr they don’t know what I have so I’m welcome to speak with others).
This Dr finally gave me a script for betahistine so we can at least try to see if something helps/ works.
My story started about 18 months ago with a BPPV attack (vertigo) and consequently two back to back bilateral middle ear infections.
Since being free from infection, I was left with IMMENSE bilateral ear pain every single day, lots of sensorineural hearing loss (in less than a year’s time I am now clinically deaf, in both ears), relentless ear fullness, and pulsatile tinnitus in my R ear.
I have to take prednisone that I try to use as needed (I have some on hand because I have RA) and if I’m not taking prednisone I’m stuck taking ibuprofen because that’s how painful my ears always are.
Does anyone else with meneires always have raging ear pain? This seems to be the symptom thats throwing all my ear doctors off. They go from saying I have autoimmune inner ear disease, to meneires, to possibly something genetic- but all say they don’t really know if ear pain fits any of these diagnoses.
It’s horrific living every single day like this.