This has been my number 1 symptom since the beginning and I rarely see anyone else mention that they have it? Mine is constant but varies in severity depending on what time of day it is and if I have a cold, flu etc or my period. But it NEVER fully goes away!
I’m currently on several supplements and Valium but don’t yet have anything else pharmacutecal I’m praying my primary will prescribe something soon but not sure what to ask for since I don’t have the usual mcas that most have.
Are anyone else’s symptoms mostly neuro? Mine are severe brain fog, bad head pressure during flairs, slight numbness in my face. Ear pressure pain and popping, eyes go in and out of focus with floaters and spots of color, personality changes and severe ocd. (The ocd started before all my other symptoms) life is truly miserable for me as I’m constantly running to the ER to have my head checked because I get so scared of the head pain especially when it’s different than usual. I’ve had 16 ct scans of my head since October 2024. I have a MRI scheduled for next week but I had one a year ago. Praying for no changes. The only thing that helps me slightly is quercetin, luetolin and Valium for the head pressure. Has anyone found anything else that helps this side of MCAS?