u/Malty8288

Hi All,

I started Carbamazepine just over a week ago for suspected trigeminal neuralgia, currently 100mg twice daily. It has honestly helped my facial pain massively (probably around 95% better), so I really don’t want to stop taking it if I can help it.

The only thing worrying me is that since starting it, my mouth has felt sore/burnt/tired inside, mainly my tongue and the roof of my mouth. I’ve also had a couple of small mouth ulcers and some facial flushing/redness.

I feel completely fine otherwise. No fever, no widespread rash, no blistering, no flu-like symptoms etc. I stupidly Googled it and now I’ve terrified myself reading about allergic reactions.

Has anyone else had milder mouth symptoms like this on Carbamazepine that settled down? I’m in the U.K. and trying to work out whether this sounds more like a common side effect/sensitivity or whether I need urgent help.

Today, my GP has said I likely have trigeminal neuralgia. I’ve been prescribed carbamazepine and I’m trying to understand what is going on.

My pain is all on the left side. It feels worst in my top left teeth, especially the first 5 going backwards from the front tooth (see image). When it flares, the pain is severe and lasts around 15 minutes, this is happening between 6-10 times a day.

I also get pain in my left cheek, sinus area, nasal cavity and above my left eyebrow. Between attacks, it’s not constant pain, more like a lingering ghost pain feeling, with the occasional ache/sensitive teeth feeling.

I saw my dentist first because it felt dental, but he didn’t think it was coming from a tooth following X-ray and examination.

I’m not asking for a diagnosis, just wondering if anyone else’s TN started like this, with tooth type pain and attacks lasting around 10–15 minutes?

I’m struggling to eat, sleep or function! How long will this carry on?

Edited to add - this started 1 week ago

Carbamazepine - sore/burnt mouth. Has anyone else had this?