In in a relationship with a man who has LGMD. He is the most lovely man I’ve ever met and I want to spend the rest of my life with him. He turns 26 this year and is still able to walk but the fear of him losing that ability scares me. Not because it changes the way i feel for him, don’t get me wrong.
LGMD is still new to me and I’ve been trying to do research on it, but the more I read I just start crying if I’m gonna be honest. I want to be strong for him and I don’t know how. I wanted to know if there is any “support group” or so, for partners to people with LGMD, or if anyone has any tips or advice. I’m not usually a sensitive person but this subject hits me pretty hard. I want to make his life the easiest and help him the best I can. Although he’s very open to me and we often talk about it, I think it would be nice to hear from someone else who’s been where I am. I’m sorry if this text was a bit messy, I just feel pretty lonely in this since I don’t know anyone else with LGMD.