Lost my 7 month old to AML
I’m new here. I don’t know what I’m searching for. A connection with people who understand?
My baby girl was diagnosed with AML with CNS involvement 30/12/25 and she started chemo the following day. It’s a blur. She did so amazingly well through her induction and started to improve afterwards. The hope we felt was incredible. The doctors even told us her brain and spine were clear. And then suddenly she started to decline. We still don’t have answers but we’re told she had an abnormal reaction to the medicine. At the end she spent 4 days in PICU on dialysis and ventilation after experiencing many seizures. They think she may have had VOD but like I say, we are waiting for results. All I know is her ammonia and lactate levels were sky high. She passed in our arms 1/4/26.
I feel her around me. I hope she is safe and at peace.
Could anyone suggest any groups of child loss or kids cancer please? I’m ready to share x