u/LevelGold9351

Someone else to me had confirmed sCJD about 3.5 months ago, after about 5 months of noticeable symptoms. They were diagnosed via Rt-quick test, mri, and then dna testing confirming sporadic. So, they’re at least 9 months in. Still able to swallow, shuffle around independently and use the toilet. Noticable mycolnous and hands are basically worthless at this point due to the “frozen” posture. Can still communicate but it’s diminishing to simple answers.

Has anyone else’s loved one maintained physical abilities through the end? I feel like the end must be near considering the time since symptoms showed up (and honestly we thought there was FTD for about 1.5 years before, which is why we even discovered the CJD)