When i was younger i did a test about all disabilties, and it came out that i have ADHD and dislexia, my parents always tell me neurofibromatosis causes it, but i dont belive them, do anny of you know if its true or lied to make me feel better?
So i was born with NF1 and by me i have a tumor on my right eye nerve, i have yearly check ups to check if my vision on my right side isnt worsening, but nerly every time i do the check up i have a new docter who thinks i dont understand the test works.
How the test normaly goes:
-tape off one eye
-chin on chinstand
-4 yellow lights in the middle with a light going less and less bright and i have to say when i can see it with a buzzer
-lights all over a half circle and click the buzzer when you can see the light.
What keeps happening is that the docter when testing my right eye thinks i dont understand how the test works because i dont click by step 3 (i dont see the light, not even the yellow lights). I even had a docter offer me a lens in front to 'help me see', it does not, i have a turmor on my right eye nerve. I hate the fact that docters who learned years know less about it than myself, and they dont even lisin to me.
I understand every NF isnt the same, but please lisin to patients when they say they cant see it, and do not restart the test 5 times.
to annyone wondering here is how much i see with each eye (just had a test with a nice docter):
left: 125%
right: 3,33%