Has cholestyramine made anyone shit more? Is that possible? Been taking 1 loperamide pill daily for like 6 months but new doc just had me switch to cholestyramine and I’m going more than ever. Been about 10-12 days.
Ive had the same GI since I was diagnosed 7 years ago. I was initially told I had mild to moderate disease and was on azathioprine and very low dose prednisone for years. I had occasional flares. I’d be put on antibiotics and increased steroids short term to knock it down. These were rough times but I seemed to bounce back relatively quickly- meaning a few days or a week at most. My scans and bloodwork supported that I was doing ok.
Then it got severe and I was extremely sick for multiple months. I started skyrizi, but still needed surgery. I went through hell, but seem to be doing better now 🙏🏻. It was during this period that I joined this group and realized my GI was not doing a lot of things that others were recommending, given my situation. I’m specifically talking about calprotectin test (which I’d never had done), cholerstyramine prescription, rheumatologist referral for arthritis, bone density scan, iron infusions etc.
I recently had my first appointment with a new GI and they are doing ALL of this…after the first appointment and bloodwork. I left the appointment with a wide mix of emotions. Hopeful, pissed, and confused. I personally liked my original GI, but what the hell!
Don’t know what my point of writing this is, other than to say this group has been helpful and supportive. and to encourage people to find other docs if you aren’t getting the attention that is needed to combat this disease and side effects.