I’ve been dealing with atypical trigeminal neuralgia since April 12th and it’s destroying my life. At first they thought it was typical TN, then even possible facial palsy, but they finally confirmed it’s atypical TN, meaning constant, unrelenting pain, not the brief shocks of the classic form.
It started right after a dog barked in the street (I have a dog, I’m used to barking — it wasn’t fear). From that moment, a deep, continuous pain appeared from my left temple down to my jaw.
I was hospitalized in two different hospitals for almost two weeks. Brain MRI and TMJ MRI were normal. They tried pregabalin, eslicarbazepine (Zebinix), rescue meds, and finally a radiofrequency ablation of the trigeminal nerve (V3) + preauricular nerves.
I was discharged on April 28th basically the same as when I went in.
They prescribed metamizole and dexketoprofen every 8 hours, but the pain is still unbearable. And when my period started on Friday, everything got so much worse. I’m completely overwhelmed.
On top of that, I’ve been stuck in the same migraine attack since February 11th, 2026. Compared to the neuralgia, the migraine feels like tickles — but living with both at once is inhuman.
I was also diagnosed with depression a few months ago, and this whole situation is pushing me far beyond my limits. I’m deeply desperate and exhausted.
Has anyone with chronic refractory migraine + atypical trigeminal neuralgia gone through something similar?
I’d really appreciate experiences with:
\- atypical TN (continuous pain)
\- Zebinix (eslicarbazepine)
\- Rivotril (clonazepam)
\- trigeminal radiofrequency
\- severe worsening during menstruation
I’m writing everything that’s happening to me like a blog outside Reddit as a way to vent. If anyone wants to read it or know more, I can send it privately.
My native language is Spanish (Spain).
Thank you for reading.