u/LaruePDX

I first got off Fin in 2020 and if I had known about PFS maybe things would have turned out differently. I could have used this resource. not sure if it existed in 2020

Thinking about the lives lost and destroyed from PSSD/PFS and related diseases is insane. How does Western medicine just continue to dismiss us?!?Prescribers and big Pharma are straight up killing people. How long will society continue to ignore this?!?Someday we need this to be recognized as a legitimate disease/syndrome along with other complicated auto immune conditions.

in 2023 7,5 Million prescriptions were filled for Fin. I couldn’t find more current data. Is this so rare that it is less than 1% of us?!? is that why it is ok that our lives get fucked. Make it make sense, please someone tell me why our lives are disposable?!?

There is just so little left of the guy I once was. it feels like my brain is in a state of atrophy. I was reading this shit can cause your neurons to stop firing and grow new ones in severe cases. it is so crazy to think back. I remember thinking how much healthier I was than my parents who smoked and drank. I really thought I was healthy. I was eating right, hitting the gym. Rode my bike 30-60 miles a week.Had a great career and friemds. Meanwhile I was taking a fucking biological weapon daily peaches of my insecurities . I dismissed side effects as just getting older.

I wasn’t even fucking balding when I started this poison. Thought I was super smart taking it before hair loss became an issue. FML!! if I was told there is a 1% chance you will completely destroy your life by taking this med. I may have still thought “Not Me” idk….. but with the info we have now readily available how are people getting on this shit?! It is heart breaking to see kids not even old enough to hit a bar basically wreck their lives because of misinformation from jack asses.

I used an anti depressant back in 2020 when I first got off. I think it is what made it permanent.

On behalf of those that are severe cases and those that have crashed to a worse state due to interventions that you thought would help. please, if at all possible just look up foods and products to avoid the first 12 months. After 12 months pursue research and risk tolerance to guide your next steps. This is going to cut my life shot drastically. I would love for that to not happen to Others. Do not underestimate this disease. You are a crash away from loosing everything.

Have you guys thought about as you get older and have no chocie but to take medications. Have you thought about what you would do?!? or are you expecting to be healed or maybe a cure is available at that point?

The last crash that did me in was June/July of 25. I took an otc head cold medication. I had looked it up. But, I accidentally got the wrong one that affected serotonin. Almost immediately had vertigo and felt like my head was going to explode. I knew I would never be the same. I had tolerated Omega 3 and Magneium. After that crash everything became an issue, nothing was safe any longer.Anything can fucking crash us at anytime. Just venting and wishing I had cashed it in years ago. Things got super messy the longer I tried to hold on and in denial about my symptoms.

We are seeing folks that have found this subreddit after using Fin. But, as we find out more info. a lot of us have used a stack of some sort of different types of DHT blockers including Shampoos, supplements etc… I used shampoos along side Fin for years. Did you guys make the same mistake?!?

I am having some discussion in my previous posts. Is it possible to get PFS from short term exposure ex: one pill. or do you think it is merely Placebo effect and they just need therapy?!?

this is his take on one pill exposure:

“don’t believe that people can get PFS from one pill. Don’t get me wrong I think Fin is absolutely the devil, and shouldn’t be given to us. I myself am facing the consequences of using it. But… I think the using it once then suffering from PFS is an urban legend based off of people’s paranoia and placebo effect. Those people should also be in therapy for help also.”

I spent a lot of time on the Propecia help forum boards in the past. There is just way more data going back over ten years. While many find levels of recovery and some feel they have full recovery. The one thing that pops up even on this forum is people feeling levels of recovery then crashing. Identifying all the triggers is nearly impossible. I still believe this disease can sit dormant and recovery looks like remission. Just like cancer you can go the rest of your life with it in remission Meaning a possible crash(worsning of symptoms or new symptoms)) is always a real possibility. Also, one mans version of a severe case is another‘s mild case. No one can claim to have all the answers. We can only do our best to avoid known triggers. Food, supplements, high stress levels and medications.Also, it seems sexual sides seem to be the most persistent even when other things resolve.