u/Lanky-Rough2688

▲ 2 r/MCAS

my hubby might have lupus. He goes in today to get the test ANA probably to begin with. At the rheumatologist. He is my full-time caregiver. I have MCAS. I have pots and I have CFS. CFS for 20 years with management MCAS 10. I also been fighting for almost a year B12 deficiency. They think he has it because he has an unusual happening that’s rare in his eyes in the retinal . And he also when getting the injection in his eye for that, Had the red butterfly flare which he had a few days earlier in front of me

I’ll put it in later if it comes back positive the ANA test, But we’re in our 70s in the loop is so probably benign They say On the Internet. I guess I’m just posting to let people know that your life can change quickly. He’s also having memory issues and what they thought was possibly arthritis, but who knows now. He’s already gotten through cancer, squamous and badal on his nose with a forehead flip over it after surgery Stage two prostate cancer with proton therapy. I had him as my caregiver during that time, but that was before the B12 deficiency which has taken me down so much people make sure you look into that! So nervous and just sharing. I am both scared and hopeful but I know he’ll be in the same neighborhood with me now and I’ll be able to be a bridge.

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u/Lanky-Rough2688 — 11 days ago
▲ 2 r/MCAS

now after 10 years with mcas and b 12 def my hubby is going to be sicker than me. our diet he shares with me will help as it prob already does. Low histamine but not zero. GF. High fiber. Green!!! Low sugar. B 12 foods like eggs and frozen bison and salmon. . how did I know? we have it hard and become polarized so don’t forget to look at your partner too. he was taking naps along with me. An he has the butterfly lesion. He had vision probs. Really dry skin. Our full time caregivers need to take CARE of themselves too. best to all. Thought I would share. Life is what happens between the ruts on the road!!!

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u/Lanky-Rough2688 — 16 days ago