26 and feel like I’m falling apart a bit
I am a 26 year old woman. I used to dance since I was very young, and was always chronically ill but still always energetic, just a bit of a klutz! This was until I turned 19. First, I had some trauma, then the really bad balance issues, falls, and severe joint pain started. Skip to 2024 and I went to a rheumatologist that diagnosed me with HEDS. I have been struggling as it has gotten worse over my early 20s, so much so that I am in PT, started using a cane or wheelchair and braces for big walks/events, and overall was in pain 3/5 days of the week. I just had a pretty bad fall a few weeks ago and I feel like it made things worse, even though I wasn’t injured (I was checked over by a medical professional) I feel like I am broken. My body is aching worse and I feel unstable and now I am using a cane more than I was/on a daily basis because I keep almost falling, it’s like my body can’t hold me up. Advice? Any similar experience? I don’t know who else to go to as my rheumatologist isn’t very nice. Thanks!!