u/Ketnip_Bebby

Your experience of fatigue and pain + fludro/midodrine

I see a lot of people with autonomic conditions talking about fatigue and it usually reads as sleepiness. People eating meals and then needing to lie down because they feel like they're going to fall asleep.

my experience of fatigue is nothing like that. it's more like being overtired and wired. My chest and head are the only places I feel it and I also get a deep ache in chest and head.

why is mine so intense and painful? I did used to have sleepiness BEFORE getting diagnosed with POTS in 2020 when the fatigue got really bad. I remember eating meals and taking naps. What's going on? Why do I feel painfully exhausted ( ._.) I'm trying fludro the past month and it hasn't helped so I'm not sure it's blood volume related. I'd like to try Midodrine because I heard it improves vascular tone and helps push the blood upward, but I don't have low BP so they wouldn't gimme.

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u/Ketnip_Bebby — 9 hours ago