u/JustaGirl_2643

Hi everyone,

27F, UK based - have decided it’s probably time to break up with my colon. I have FAP, no symptoms or problems from my polyps ~ I don’t even have IBS ~ but my polyp burden isn’t sustainable.

I have 2 options for surgery - IRA or stoma/barbie butt. I’ve already ruled out J-Pouch due to family history and witnessing all the negatives and few positives.

Unfortunately, all surviving members of my family with FAP have been diagnosed with adenoma’s following surgery, one in the remaining colon leading to a permanent stoma. I’m just keen to hear as many experiences as possible as appreciate it might seem extreme to go from a completely “normal” functioning bowel to none at all.

Tia.