u/InterviewBig2497

I started prednisone 10 days ago after 7 weeks of not being able to eat on Entocort. Prednisone is helping much more with the inflammation and pain in general but MAN AM I HUNGRY!!

I want to eat 24/7 which then obviously aggravates my digestive symptoms. I am a compulsive eater in general so any tips to curve the hunger and cravings are much appreciated or just knowing others can relate to this very annoying cycle. 😂

I went to emergency department April 21 and got a CT scan then. The doctor came over and told me they found inflammation, they sent a referral to GI and that was it.

April 27th I go back to ED in the worst pain of my life. They give me pain meds and start me on stronger steroids until I can see GI for biologics. This dr says he read my CT from the 21st and mentioned fistulas forming. The first doctor never mentioned that before.

April 30th I see my family doctor to be put off of work. It was a student doctor in for her and he tells me there’s fistulas starting and puts me off work for 3 months to reassess after I see a GI. Which is going to be another 2-6 weeks even with 2 emergency rushes put on them.

I just received the results back from the CT and it states that I have complex fistulating disease with a ileocolic fistula and multiple enteroenteric fistulas, bowel inflammation near or attaching to my bladder, my bladder is collapsed (unsure if it’s related but no one mentioned it), and I have 4.5cm pocket of fluid but they couldn’t confirm if it was an abscess or not. Along with a list of other things but those stuck out the most to me.

I have never had a crohns flareup before and was dx two years ago with no symptoms (only mild inflammation on a colonoscopy then) so I feel pretty nervous about this. Is that as scary as it sounds or just medical terms making it sound worse?