Does Anyone Else Have Hashi-Graves?
35f, was diagnosed with Hashi’s years ago and I also have multiple other autoimmune conditions (Sjoren’s and type 1 diabetes among them) and usual antibodies, and tbh I used to say that Hashi’s was so far down my list of concerns I didn’t even think about it.
I took a low dose of synthroid and sometimes even skipped it… as far as I know, my thyroid levels were pretty normal… at least, they weren’t discussed. Other levels were urgently abnormal.
Then several months ago, one of my doctors said it looked like I was over-correcting. I stopped taking any synthroid at all. Next test, it was normal. Then, a different doctor said it looked like I was over-correcting… but I hadn’t taken synthroid in months. They checked for Graves antibodies, and I was negative.
My heart rate and blood pressure shot up over weeks. I have struggled with sleeping, but was sleeping an hour or two a night or not at all, and still feeling wired. Sleeping meds didn’t touch it. My Hashi’s antibodies were through the roof, so we assumed Hashitoxicosis…
Iodine slightly elevated (some mineral drops I’d used had some)…
Now, apparently I have Graves antibodies. So I somehow have both at the same time.
I’ve been taking 10 mg methamazole once a day for a couple months now I think… it seems to be fine. I am not tolerating beta blockers well. At all. Last couple weeks, I was so tired I could barely function and d was in bed for days. I’ve been weaning myself off the beta blockers thinking maybe I was ready, and cut my methamazole in half… but now I’m back to not sleeping.
Has anyone else had a similar experience?
Have you found anything to work for symptom control besides beta blockers?