u/Ill-Lock1235

What pills have you tried to improve your pots cfs longcovid or mcas?

In total, I think I’ve tried 10
Famotidine
omeprazole
Ketotifen
Allegra
LDN
Amitryptiline
COQ10
Propanolol
Sucralfate
Magnesium glycinate

Of the ones that help, those would be omeprazole and propanolol
(Amitryptiline helped for a lil bit with my stomach issues but stopped helping)

So yeh.. how many pills have you tried and which ones have helped or not helped?

A lot of the ones i see online seem to overheat or lose their capacity very fast overtime. I already changed mine once and it overheats and battery life is really bad. Its not the ios cuz im on ios 17

Obviously, with this illness, preventing PEM comes first, and that affects what we look for in friendships.

For example, its critical for us to avoid people who create a lot of drama or are constantly involved in problems, because stress can worsen symptoms and trigger PEM.

There are also smaller things that matter, like how clearly someone communicates or how fast they talk. Sometimes processing conversations can take extra energy, especially depending on severity.

Everyone’s criteria will probably be different depending on how severe their illness is

I for example cant be friends with people who have strong accents or speak fast as i get pem

What are your criteria when trying to make friends

.

Im tired of videogames and doom scrolling the entire day. I’ve tried hobbies but those are not so stimulating and also get boring. Being housebound sucks.

What do yall do to make your lives a bit more fun or exciting. i am boredededdedeedeeded