I’m pretty sure I have Eds or something like it, as I’m very hyper mobile, and I have a lot of Eds Symptoms. My muscles are always tired (I believe because of the effort to maintain every single join in their place), my skin is stretchy and transparent, my body is very unstable (I have literally fallen on the ground when just standing, my ankle and knee joints give up out of nowhere), I sleep in the weirdest positions (like my legs facing left and my torso and upper body facing right), upon other various symptoms. The thing is, i have been to a few rheumatologists because, since I was 25, now I‘m 30, I have been experiencing increased joint pain, and they just tell me I need to lift weights, which I do (Btw, it is so difficult for me to build muscle! Although I can lift heavier with training and healthy diet, i almost don’t increase in muscles).
I once went to a physical therapist because of a shoulder pain, told him I was hypermobile (wasn’t familiar with Eds at that point), he didn’t give a f. I told him I was hypermobile and that I needed more assistance with the exercises as my body often ‘cheats’ (for example, sometimes I find my self not using the biceps for a curl, and using my shoulder muscles instead, which is wrong), and he didn’t even look my way when doing the exercises. My TMj specialist and orthodoncist didn’t give a f either. The trauma doctor that referred me to said PT didn’t give a f either. They just respond with a: oh ok.
My question is… why would getting an official diagnosis help in your experience/opinion?