
My allergist ghosted me
Spent several months on a waitlist to see an allergist to hopefully get on a mast cell stabilizer, only to be told that they only see people for MCAS when their tryptase levels are elevated, and they kicked me off the waitlist. Went back to my PCP and got the tryptase blood test - it came back negative. My PCP put in another referral to the allergist without mentioning MCAS explicitly, waited several more months, finally got in to see someone.
I told the doc all my symptoms and he was puzzled. I mentioned that my previous provider (the one I had a year ago before I moved to a different state) was treating me for MCAS and it was helping. He then proceeded to say that since my tryptase levels were normal I couldn’t have MCAS because “that’s basically a diagnostic criterion.” But he said that regardless, we’ll “figure it out” and that he’s “on my team now.” He ordered some blood tests and a CT scan.
Welp, so much for being on my team - the tests all came back normal (because of course they did), and the allergist sent me a message saying “looks like all your test results are normal. Let me know if you have any questions.” I wrote back saying something about how my question was what are the next steps, because even though my tests came back normal, I’m still having debilitating symptoms daily. He never responded, and it’s been over a month.
It’s comical at this point. I truly feel like I’m on my own with this condition. Screw the medical system✌🏻