u/Ibuprofen8575

Hi everyone,

I’m several months treating a leg DVT and recently started cycling again. I’m doing it mainly as a way to stay active without spending as much time as I would with long walks, but I find it also more fun.

My doctors also think I may have some persistent organized/fibrotic clot residuals, so I’m trying to be thoughtful about comfort, circulation, and PTS-type symptoms.

For those of you who cycle after a leg DVT: did you make any changes to your saddle, bike fit, or riding habits?

In particular, is there anything to consider when choosing saddle width or shape? Is a narrower saddle better, a wider one, or does it mostly depend on fit and pressure points?

u/bloodclotbuddha, tagging you since you are the most prominent two-wheeler around here, but I’d appreciate experiences from anyone!

Thanks!

Hi everyone,

Several months after a leg DVT, I had another vascular follow-up and a hematology visit. For now, my treatment stays the same: class 2 waist-high compression stocking, edoxaban 60 mg, and daily exercise.

My hematologist also restarted B vitamins for hyperhomocysteinemia. Both doctors think some residual clot may now be organized/fibrotic and possibly permanent. My understanding is that this is not necessarily a PE risk anymore, but may contribute to PTS-type symptoms like pain, heaviness, or discoloration.

I’m also heterozygous for Factor V Leiden, so my doctors are leaning toward long-term anticoagulation.

Does anyone here have a similar combination: heterozygous FVL, high homocysteine, and persistent residual clot?

If so, how have things gone for you over the years, especially regarding DVT recurrence?

Thanks to anyone willing to share their experience.

Hi everyone!

A couple of days ago I had my fourth leg ECD, 7 month after a DVT that interested a whole leg.

According to the vascular surgeon that evaluated me, the clots I have in the leg are in a state in which they should not be a major PE concern anymore: the veins are still partially occluded, with the sup. femural one still open to slight improvements and the small safenous vein completely occluded, since the DVT event.

In any case, the doctor told me that the clots are now so "anchored" to the vein walls and so old that is safe to assume that their risk of detaching is negligible, and that now it just a matter of treating the effects of an occluded venous outflow.

So, provided that the doctor made me understand that whatever clot is remaining will improve very slowly, little by little and that there is a non-negligible possibility of small lifelong residuals, my questions are:

1. Is anyone here dealing with very durable persistent residual clots?
2. For how long?
3. Is leg heaviness and noticeable (but not excruciating) pains to be expected as long as the veins circulations is compromised?

Thanks a lot for any information you can provide, it will be valuable in dealing with the long-term effects of a DVT!