u/ILOVEMYDOGBUMI

▲ 17 r/eds

just wondering. Extra curious what your EDS is typed as and if u have any known mutations ....

me personally, i got DDD in my neck and a bunch of (painful) perineural cysts and also some bulged lumbar discs and skinny asf syrinx. my neck sucks the worse tho–one of my discs is also fissured and I have a little bit of ventral brainstem compression due to my c2-c0 being all funky. Not really sure what the chicken or the egg is in this situation — is it my mutation that makes my spine so lax and kinda fucked? are spinal manifestations common in eds? tnxb related EDS specifically? or is it a hypermobile-thing, where the hypermobility makes us more prone to causing internal damage? What is it that we're doing that causes this at a higher rate than other people? it's probably just a combination of a bunch of things but probably because of poor muscle usage and poor weight loading bc the body is so tense trying to keep the joints together, which causes stress on the discs. IDK. What do y'all think, lmao!

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u/ILOVEMYDOGBUMI — 18 days ago