FND tics that almost entirely happen alone or in the middle of the night?
I’m diagnosed with non-epileptic seizures and I think FND (didn’t really get a clear answer from my neurologist). I considered these short episodes of jerking an arm/a leg/my head to be NES but now I’m not so sure. They used to happen exclusively at night, typically waking me up from sleep, which is why tics got ruled out initially as my old neurologist said “tics stop during sleep”, but now they happen during the day. The weird thing is, whenever I’m self-conscious about having a “tic”, like being in front of other people, they rarely happen. Honestly it feels embarrassing to even talk about because it doesn’t make sense, everyone else with tics seems to say anxiety in social situations makes tics worse, and I keep trying to gaslight myself into thinking I’m doing it on purpose and I don’t actually have tics or whatever this is. But it’s like the tics can be suppressed and I just “don’t do that” when I’m alone, like I just need to let it out when alone because it feels like a burst of energy needing to be released. Does anyone else have a similar experience? And does anyone know how to prevent neck injury from repeated jerking? Because especially with my hypermobile EDS this can hurt.