Hey all, I was wondering if there were any incompletes here with a colostomy or suggestions for bowel management that could give me some advice.
I'm a L3-sacrum from birth due to deformities and C1/C2 about 10 years ago, both incomplete but lower spine much more severe. Over the past year or so I have been in AD hell, specifically with my bowels and I am genuinely at the point where I want to beg for a colostomy.
I have a little bit of bowel control but need tools + the usual laxative/suppositories etc combo to get the job done. I eat lots of fiber and drink a ton of water and do my full bowel program every night and usually have at least one natural movement during the day, and yet I can still end up with an AD episode literally at any time. I also have an immune disorder that is attacking my bowels a lot like chrons disease which of course complicated things and can cause frequent diarrhea and incontinence and terrible pain.
I'm scared to leave the house or eat anything besides soft foods or do anything really because the episodes come on fast and are terrible. I spend at least 2-4 hours in the bathroom every day yet still get at least a few episodes every month and it's miserable.
Does a colostomy sound like a possible solution, and does anyone have any additional tips? Also does anyone have good doctor recs in the northeast because my local docs don't handle SCIs and I haven't seen a specialist since I moved up here.