u/Haunting-Program4063

Clonoseq

My most recent clinoseq detected one of the same sequences that was found when I was first diagnosed. I’m almost a year out of treatment and I’m worrying about a relapse. I had an appointment with my NP to discuss it and she said not to worry just yet, that they’re monitoring it for now. Has anyone experienced this before and how did it play out?

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u/Haunting-Program4063 — 5 days ago

Long term nausea. Finished 2.5 years of CALBG 10403 treatment for B-cell ALL in June 2025. I have nausea spells even now, almost a year later. I’ve come off all meds, except vitamins, nausea meds, and rescues. It worse in the morning, but it lasts throughout the day. I’ve noticed that it’s worse with illnesses/anxiety, but it’s an all day thing. I was always sensitive to smells, but this is on another level. Please help, I have a recurring Amazon order for emesis bags.

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u/Haunting-Program4063 — 15 days ago