Those with severe Gastroparesis-first line of treatment
Quick overview: I’m curious for those designated as having severe Gastroparesis. I am , as my GES was 99% until hour four at which it was 95%. I have been to six gastroswithout any help. It’s too severe and they can’t help me they say. Or deny that I have it at all or ask me what to do. I cant take meds, I’m allergic to them. I had one doctor, a gastro at Mayos, that was the first willing to help me but my insurance pulled out and that was in December. We rescheduled for January. Only a multitude of tests no mention of specific interventions yet. But as of the new year Medicare and Medicaid don’t work with Mayo any longer so I lost the only doc to help me.
I see a new gastro finally next week and he is supposed to be amazing.
In short, I’m wondering if this GJ tube or G tube or J tube of NJ was a first line of treatment for any of you? It’s been almost three years since my diagnosis and the disease has gotten a horrible. I don’t digest most food at all. Even if puréed. Even soggy rice cereal doesn’t digest fully. Baked lays seem to be my true safe food. But I need nutrition. I take supplements and drink ensure but who knows what gets absorbed. It’s also been suggested to me by more than one doctor that ibhaveEDS. of NJ was a first line of treatment for any of you?
What was your treatment journey?