u/Great_Piccolo8637

▲ 9 r/MCAS

Estrogen reactions

I'm on Slinda, just starting pack 4. For over two years my skin has reacted every time my hormone levels shift, it's the rate of change that triggers it, not the levels themselves. This week my Oura temperature moved from +0.1 to -0.2 and within a day I had rashes, prickling and itching that's lasted two days now.

Slinda has genuinely helped, I'm less reactive than before and I can eat more freely again, which felt impossible not long ago. But I'm still getting these reactions with each hormonal fluctuation and I don't know what else I can do.

This has taken so much from me. Two summers lost with my daughter because heat and sun were impossible. My training stopped for a long time for fitness and I am a yoga teacher so my work is impacted. I've only just started moving again and every time a reaction comes everything pauses.

I can't take estrogen. I've used progesterone for years and it didn't stop the reactions. Other progestins would cause more bleeding which means more hormonal dips. I don't want to go down the medical menopause route. Slinda is the closest thing that's worked but it's not fully there yet.

I just want to understand if there's anything, lifestyle, timing, approach, that could reduce how much I react to these shifts and will Slinda continues to deepen its suppression.
Ive done years of functional health too and even studied it. Ive done HRT with Progesterone, testosterone and LDN.

I am currently taking Cromolyn, Montetlukast and Antihistamines daily plus Slinda. I feel so down it is really making life so hard and limiting my joy happiness and time with family.

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u/Great_Piccolo8637 — 23 hours ago