Migraines
Vent:
Hello everyone just wanted to introduce myself. I suffer from Occular Migraines which make me completely lose my vision in one eye or cause visual color change. I also get status migrainosus. I’ve had a million Mris and everything is always normal except for the possibility of IIH and they always say I don’t fit the criteria for it. I’m on a billion migraine medicines yet I still get migraines daily. I’ve pretty much accepted my fate that I’m going to either go blind from a migraine lol or suffer from them for the rest of my life. I feel like now that all the bad stuff have been ruled out my neurologist no longer cares because it’s just a migraine. Again, I have somewhat trained my mind into them not being that painful. I just hate losing my vision and then thinking something bad is happening. I’ve had blurry, whiteouts, blackouts, brightness, problems with my eye picking up the color red. I’ve tried so many preventatives, seizure medicines, you name it and yet I still get migraines 😆 Sometimes I wish there was a reason for these migraines, but I feel like when it’s just migraines it’s written off or overlooked because ”it’s a migraine“. I have visual loss for days, horrible dizzines, pain behind the eye! I’m just over it. I even have white matter lesions from them so it’s real. Vent over!