Just need some perspective
So I was finally diagnosed with TOS today. The doctor said I have all 3- nTOS (didn’t show on an MRI but shows on a nerve conduction study), aTOS and vTOS. My vTOS is the worst but only slightly higher risk than an average person for blood clots.
I am obviously relieved to finally have a diagnosis but I also feel a bit sad for a few reasons;
- I have private healthcare through my husband’s job. my doctor said if this was on the nhs there’d be no physio or operation. I’d just be given a leaflet. This almost makes me feel a bit guilty and like I should just be getting on with it
- he said my aTOS is not bad and not much more than an average person might have. my vTOS is also only slight and doesn’t increase my chance of getting a blood clot much. So maybe I am just being a bit dramatic about it
- he said I need 6 months of physio and then probably will need the operation. I have other conditions he suspects but we need a stepwise approach. The idea of physio, then surgery, then more physio sounds really awful but so does living with this condition