Not walking or talking 22 months old
Hi everyone. My son has Benign Congenital Hypotonia we have done a bunch of genetic testing with the geneticist and our neurologist and he has no genetic condition causing his hypotonia. He also has been in physical therapy and feeding/speech since 3 months old.
His hypotonia has improved in his legs, arms and torso but still affecting his neck, and tongue.
He is 22 months and he won’t walk. He will walk against furniture like holding on to the couch, table, or wall. But he won’t walk holding onto a push walker, holding someone’s hand, or if someone is holding his torso or onto him, he will instantly drop to his knees.
For talking he only says dada, and baba. His tongue is big and has very low tone so it makes it difficult to talk and even eat. He can’t eat anything that isn’t puréed (and he’s very picky so right now he only wants plain oatmeal)
When did your children or you with hypotonia start walking? He has never taken one step unassisted or not against a couch or wall before. I feel so alone and want to help him and we have weekly therapies some weeks biweekly. And we work with him every single day throughout the day. I’m just feeling lost!