Found out I likely have this and it explains SO much. I definitely have the symptoms (feeling like the floor is collapsing, sinus pain, light/sound sensitivity, head/neck pain, irritablity, dulled emotions, anxiety rooted in nothing, fatigue, lack of appetite, shaking eyes etc).
Has anyone else dealt with this?
I am officially diagnosed and treated with cromolyn and ketotifen. The quality of life improvement I've had on these medications is indescribable.
I'm writing this because I live in a major US city. The last practice that saw us is now, as a group, no longer seeing MCAS patients. I am forced to see someone who doesn't take insurance to get my medicine. I also can't see her frequently as she does this super part time and is in a different part of the state. So she is difficult to reach when things go wrong. But she is all I have.
This is patient abandonment on a systemic level. How is this allowed?