22yrs of experience in passing kidney stones and still fighting!
I’m a 26-year-old guy, and it all started when I was 4 years old (2004).
One day, my parents noticed that my urine was red/brown in color. They panicked and took me to a nearby clinic. The doctor gave me hydration and antibiotics and sent us back home. I think they weren’t aware of kidney stones in children at that time.
A few weeks later, I started crying and rolling on the floor while holding my abdomen. My parents got confused and took me to the hospital (Christian Medical College Vellore). Even there, they initially didn’t take it seriously. They thought it was normal crying due to poor digestion or lack of sleep and told my parents to take me home.
But my father wasn’t convinced. He started arguing with the doctors and almost tried to hit them out of frustration. Finally, the doctors decided to do a scan of my abdomen.
They were shocked.
A 4-year-old child had a 7 mm renal Calcium Oxalate stone.
The doctors later apologized to my father.
They gave me painkillers and planned a “Shock Wave Lithotripsy” treatment, but the night before the procedure, I passed the 7 mm stone naturally.
Years passed, and almost every year I developed stones again. Sometimes I passed them naturally, and sometimes I had to undergo Shock Wave Lithotripsy treatment.
At the age of 12, I got another stone, but this time it was larger than 10 mm and got stuck in my ureter. Shock Wave Lithotripsy wouldn’t work, so I underwent Ureteroscopy. This continued for the next few years.
In 2020, for the first time, I underwent PCNL treatment because I had a staghorn stone measuring 25 × 25 mm.
Then in 2022, I passed another stone larger than 10 mm (image attached below).
Again, years passed, and in 2025 I underwent another PCNL treatment for a staghorn stone measuring 20 × 22 mm.
This time, I discussed the recurring stone formation with my doctor and asked them to find the root cause. They performed hormone tests and genetic tests.
The result:
My liver produces more oxalate than my body needs, even if I completely stop oxalate intake from food.
Because of this, my doctor prescribed medications. I’m still continuing them, but I still develop smaller passable stones occasionally.
*End of my fking experience***
If anyone has gone through similar symptoms or experiences, feel free to inbox me. I can share my reports, test results, and medications.