u/Girlieee617

▲ 3 r/stroke

Just wanted to share my story because it’s bothering me

Back on April 12 my mother had about 9 ischemic embolic strokes- a big one in the Left PCA and the rest were all smaller ones and all different parts of her brain. She was on a ventilator for roughly 5 days. They told me her only real deficits were that her right peripheral vision was gone and some memory/cognitive issues. She had some delirium but overall seemed to be improving a little bit more each day . They started her on Zyprexa and Seroquel which seem to be working OK.. a few days before she was supposed to be discharged, they suddenly stopped the Seroquel, kept her on Zyprexa, and switched her seizure medication from Keppra to depakote (she has a history of seizures and has been on Keppra for quite some time now) all of this was done in a day… within 24 hours of all of the medication changes her cognitive function started to severely decline to the point where she didn’t know who I was. She was extremely aggressive and even a bit violent.. a few nights in a row they had to give her a Zyprexa injection to sedate her and they put her in two point wrist restraints(I was never told any of this, a nurse actually pulled me aside very quietly and told me this was happening overnight and she didn’t agree with it) when I began questioning all of the doctors about her behavior/cognitive function going downhill, I was told that I was trying to “micromanage” her Care, and that I’m just stressing myself out, and I need to accept the fact this is just how she is now- they basically just chalked it all up to the strokes… I knew it had something to do with her medicine it was just too coincidental. For about 2 1/2 weeks I have been fighting with them to change her meds, literally to the point where they restricted my visiting hours with her I wasn’t allowed to call and receive updates they would only call me once a day ect.. fast-forward to last Thursday they took her off of the Zyprexa and put her on risperidone, they also switched her from the Depakote back to her original seizure medication.. within HOURS, her cognitive function begin to improve significantly… it breaks my heart and it’s literally been keeping me up all night to know that if I had just listened to the doctors and didn’t try to push them to change her medication that she would be left in a severely altered mental state and that would’ve been the end of it…

reddit.com
u/Girlieee617 — 5 hours ago

What type of lawyer would benefit me?

Location: massachusetts - I am my mother’s healthcare proxy and it is activated. I’m experiencing issues with communication from the hospital regarding my mother's care. Despite having several meetings, I feel that my concerns are not being acknowledged. The hospital has verbally confirmed that my proxy status is activated, but they have not provided this confirmation in writing and keep refusing to do so. Yesterday my mother had a fall and I was obviously upset. Long story short they kicked my father out of the hospital and trespassed him and then they kicked me out completely and told me I’m only allowed to visit for two hours on Mother’s Day and they told me I am not allowed to call to receive updates that they would call me only once a day. what type of lawyer would deal with this? Please help

reddit.com
u/Girlieee617 — 5 days ago

Health care proxy rights? I’m in Boston

Location: massachusetts - I am my mother’s healthcare proxy. I’m experiencing issues with communication from the hospital regarding my mother's care. Despite having several meetings, I feel that my concerns are not being acknowledged. The hospital has verbally confirmed that my proxy status is activated, but they have not provided this confirmation in writing and keep refusing to do so. Yesterday my mother had a fall and I was obviously upset. Long story short they kicked my father out of the hospital and trespassed him and then they kicked me out completely and told me I’m only allowed to visit for two hours on Mother’s Day and they told me I am not allowed to call to receive updates that they would call me only once a day. What are my next steps and what type of lawyer would deal with this? Please help

reddit.com
u/Girlieee617 — 5 days ago
▲ 4 r/stroke

My mother had roughly 9 strokes about three weeks ago… she had a bit of post stroke confusion/delirium, aphasia, and agitation… they had her on a pretty decent amount of medications she was able to understand me and knew who I was although her communication back to me wasn’t the best she would mix up her words but I could still understand her.. a day or two before she was getting discharged they made medication changes and ever since then she has been constantly agitated delirious and barely knows who I am.. they keep choking it up to all of the strokes that she had but I believe they are overmedicating her and they switched around/took away/added medication in a 48 hour period and that’s when I saw the extreme decline in a cognitive function she can barely speak a sentence coherently now I’m extremely concerned and I don’t know what to do

reddit.com
u/Girlieee617 — 9 days ago
▲ 9 r/stroke

There’s so many I’ve been reading medical journals/clinical trial results…. Has anyone tried any meds? Specifically interested in Medications that may help improve memory, or processing?

reddit.com
u/Girlieee617 — 16 days ago