u/GianlucaFord

It’s easy to ignore these struggles when you’re a powerful official in Washington, D.C. In my house, Ryu struggles to breathe because of Duchenne muscular dystrophy, the same illness that I watched kill my brothers Angelo and Antonio at ages 20 and 22. Experimental drugs could let Ryu avoid their fate, but we can’t access them under a regulatory environment that appears to prioritize bureaucratic caution over the lives of dying children.