u/GHSGDD

I recently had an EMG which was completely normal beside some fasciculations, but what can this be??

Symptoms:
Symmetrical weakness in arms/legs
Few muscle twitches everywhere
Dysphagia
Shortness of breath

Progression:
This has been going on slowly for almost a year.
It started with shortness of breath and neck weakness, shortly after I developed shoulder weakness and weakness in upper arms, then legs/thighs got weaker. Started getting fasciculations and dysphagia around 3 months after first symptoms.

What on earth can it beside ALS? If anyone has some clue on what this can be please write it down!!

Progression in order:
Shortness of breath
Neck weakness
Both upper arms/shoulder weaken
Stomach/back weakness
Both thighs/legs weaken
Dysphagia
Started getting fasciculations all over - happens around 5-10 times an hour or maybe fewer

All this in the span of under 3 months

Can ALS be symmetrical and follow this pattern, and can you have ALS with twitching all over and so few of them?

Is it that ALS twitches are focal and are twitching frequently- all the time.

And benign twitches are everywhere and not as frequent?

Is it that benign twitches tend to be all over, not as frequently and ALS is more focal at onset and spreads and is way more frequent?

My twitches is spread all over and I maybe twitch 5-10 times an hour or maybe fewer.

I saw somewhere that Als twitches happens focal and happens all the time and spreads as other limbs get affected but that bfs or benign twitching happens everywhere and not as often.

How true is that and how does one tell the difference?

I will follow up with symptoms, progression and tests taken:

Symptoms:
Weakness
Fasciculations
Shortness of breath
Dysphagia

Progression:
It started early summer with shortness of breath followed by neck weakness. 1 month later both shoulders/upper arms started also getting weaker and a little later both thighs/legs was also getting weaker. In this period I also got more dysphagia and it was 3 months later from symptom start where I noticed muscle twitches all over. Now both hands are more stiff and my shoulders/neck are also stiff.
I also have pain in thighs/calfs/lower back as-well.

Tests taken:
ANA - negative
Ck, iron, TSH, cortisol, NfL all normal
Brain mri - normal
Vitamins, minerals, electrolytes all normal
Emg next week

If anyone has some advice or suggestions on what this could be let me know!!

I (19M) will follow up with symptoms, progression and tests taken:

Symptoms:
Dryness
Shortness of breath
Weakness
Fasciculations
Stiffness

Progression:
Started the summer off with shortness of breath while exercising, then a month later both shoulders/arms/hands was getting weaker and then some time later both thighs/legs started also getting weaker. I have had dryness trough all of this but haven’t connected it at all.

Tests taken:
ANA - negative
Iron, TSH, cortisol, NfL, ck all normal
Vitamins, minerals, electrolytes all normal
Brain mri - normal
Emg next week

If anyone has some advice on what I should do or some suggestions let me know!!

What types of MD progresses rapidly? 19M in the diagnosis process (having an emg next week) and have a visit to a neurologist in two weeks. My progression have been quite fast. Shortness of breath, symmetrical proximal weakness and some distal weakness in calfs and forearms. I just want to know which types of MD that has a fast progression!!

If anyone has experiences with it or has some advice let me know, theres no wrong answers!

I will follow up with symptoms, progression and tests taken:

Symptoms:

Hiccups
Shortness of breath
Weakness
Fasciculations
Stiffness
Fatigue

Progression:

I started the summer with shortness of breath while exercising, then soon after both shoulder/arms started getting weaker, then 1 month later both legs started getting weaker aswell.
3 months after my first symptoms I started getting fasciculations.

Tests taken:

ANA - negative
Ck, TSH, iron, cortisol, NfL all normal
Vitamins, minerals, electrolytes all normal
Brain mri - normal
Emg next week

If anyone has some advice or suggestions let me know!!

I will follow up with symptoms, progression and tests taken-

Symptoms:
- weakness
- fasciculations
- shortness of breath

Progression:
I started the summer off with shortness of breath while exercising. Soon after both my arms/shoulders started getting weaker, and then later both my legs/thighs started also getting weaker. 3 months after the first symptoms, I started twitching all over.

Tests taken:
ANA - negative
Ck, iron, cortisol, TSH, NfL - normal values
Vitamins, minerals, electrolytes all normal
Brain mri - normal

If anyone has some advice, or some suggestions on what this could be I will gladly listen!!

Can als start symmetrically? Did your symptoms begin on one side or both sides of the body at the same time?

I will follow up with symptoms, progression and tests taken-

Symptoms:
- Weakness
- fasciculations
- shortness of breath

Progression:
I started in early summer with shortness of breath when exercising, then a month later followed by weakness in both shoulders/arms and then a month later weakness in both thighs/legs. 3 months after the first symptoms I started getting muscle twitches/fasciculations all over. I now also have some dysphagia.

Tests taken:
- ANA- negative
- Vitamins, minerals, electrolytes all normal
- ck, iron, cortisol, TSH, NfL all normal
- brain mri - normal

19/M and skinny

If anyone has some suggestions on what this could be let me know and I will gladly listen to your advice

I will follow up with symptoms, progression and tests taken-

Symptoms:

- weakness

-fasciculations

- cold feet

- some stiffness

- shortness of breath

This summer I started getting shortness of breath then got weaker symmetrically in my upper arms and then upper legs. In september I started getting fasciculations all over and also started getting some mild stiffness in hands and then cold feet

Tests I’ve taken:

ANA - negative

TSH, cortisol, iron, etc all normal

Brain mri - normal

Vitamins, minerals, electrolytes all normal

Could this be hypothyroidism?

I have symmetrical proximal weakness and a little distal weakness, can ALS have a symmetrical symptom onset?

My symptoms are symmetrical proximal weakness with a little distal weakness too. Can ALS be completely symmetrical?

Is there anyone here with MG who doesn’t have fluctuating weakness but rather a progressive course?