u/Fun_Guest_64

I am 6 months out from my liver transplant. Things have been going so well. A few hiccups bit overall really well...than boom. AST and ALT elevated. Now Tacro high and I just tested positive for Epstein-barr.

Reading up on it is really stressing me out.

Has anyone dealt with EBV? The treatment according to a medical article I was reading is lowering anti rejection meds. That us scary being my liver enzymes are up.

I am waiting to hear from my liver team as I am writing this. It is always good to hear from people who have dealt with it.

Thanks

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u/Fun_Guest_64 — 10 days ago

Hello, Apparently my original post was confusing for some. 7 and 1/2 months ago I had regular routine blood work done with my naturopath. She had been prescribing supplements to help heal some gut issues. Prior to that my liver numbers were perfect. We ran the blood work, and my liver enzymes were high. She was extremely worried, we redid the blood work and they were even higher. She then sent me to the ER where they ran the blood work again and I was immediately admitted. Within 3 weeks my liver failed and I ended up having to have a transplant. I am very blessed and grateful that they were able to find a liver, I was ours within dying. The supplements put me into acute liver failure, I do not take any supplements currently and I will never take supplements again other than a few vitamins.

Why I originally posted is become my ALT and AST are elevated. Up until now it has been perfect. I am currently at AST 88 and ALT 249.

I am trying not to freak out. My WBC's were down in early March and my myfortic dose was lowered. I am hoping that is what it is. I haven't heard from my team yet. Last week they just said let us do the worrying for you. Hard to do!!

Is it normal for numbers to fluctuate on a regular basis? Anyone had a similar experience?? TIA!!

Edited because my wording was confusing.

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u/Fun_Guest_64 — 15 days ago