In this timeline of events:
- Had headaches/right eye pain for some weeks after taking a penicillin for a skin/rash infection.
- Then woke up with tinnitus
- Later developed hearing sensitivity and eye floaters
- Still had some occasional headaches but after a few months went away
- Jaw clicking became more apparent, right sided.
Years later gradually got new symptoms, would sum them up as:
- Tinnitus present always, sometimes spikes with posture/neck/jaw.
- Sometimes had unilateral tinnitus, with muffled hearing on one side, or occipital discomfort/detachment feeling.
- Sometimes the spikes happened with temporary deafness.
- Hearing sensitivity, fluctuates, sometimes worse when i feel discomfort behind occipital area behind head, or head tension is bad.
- Head/facial/temple/nose/behind neck/head muscle tension, worse in mornings.
- Visual disturbances
- Eye floaters and visual snow, or fast rapid moving dots (only visible looking at sky)
- Flashes of light.
- Visual auras lasting 20-30 minutes followed by a headache / sometimes right eye pain (3 events in 4-5 months)
- First aura event occurred when standing/using pc for hours.
- Second aura event occurred on waking after deciding to sleep one night with no pillow, flat on bed.
- Third aura event occurred within 5 days of second aura, after lying down and bending neck to look at phone.
- Dark fixed cloud in vision at night [One time occurrence]
- White text/lines blur blotches [Sometimes I see white text/lines blurring or blotches appearing along the text
- Unilateral short streak line visible only when blinking
- Often see black/white/translucent rainbow dots in vision, sometimes in day, but frequent at night or persistent.
- I often find that its harder to see at night, as in low visibility or blurriness maybe?
- Left sided jaw clicking worse in morning
- Sinus/nose pressure worse in morning
- Dry eyes in morning
- Catching on throat swallow / coarse breathing if i relax throat and sometimes lying down sideways i feel like throat sags. Coarse/snore breathing especially when lying down flat on floor, which is new to me.
- Voice lisp, probably from jaw tension/tmj
- Scalloped tongue always present.
- Throbbing behind head sometimes audible when sleeping/lying down, or after exercise; would sometimes see heartbeat in vision accompanied by throbbing.
- Clenching abs i would feel pressure propagate through jaw/throat sometimes sinus/eye.
- Frequently bloated
- Sometimes excessively yawn
- Right eye pupil bigger than left (mainly visible at night, during day seems about same time, both pupils react fine to light, only noticed 5 months ago)
Background context:
Never injured myself, just use PC a lot, possibly hours without breaks. Don't do a lot of exercise.
Doctor visits:
· ENT doctor visits -> said everything fine, unclear cause of my issues
· TMJ doctor visits (No imaging) -> said jaw looks fine
· Sleep apnea home test -> negative
· Blood work -> normal
· Eye exam -> normal
· Auditory region of brain MRI -> normal (they did this to mainly rule out cancer in hearing region)
· Hearing test -> normal
· Physio -> Claimed weak deep neck flexor, said do chin tucks. Did chin tucks, have made or started throat issues, like throat catching/coarse breathing on relaxing of throat.
Possible causes:
· Cervical instability or EDS or hypermobile neck?
· UARS / sleep issue (possibly not?)
· Dysautonomia (possibly not?)
· TMJ – (I know I have this but unclear if an upstream or downstream issue)
· Musco-skeletal / posture?