u/Frosty-Platform7218

Blurry vision, one eye worsened over the years, intolerance to glasses, and sometimes one eye is way worse when I wake up.

Hearing difficulties and processing audio sometimes.

My symptoms are worse when I get up in the morning.

Am having some breakthrough bleeding and hormonal issues. I have stuff diagnosed. I have some flu-like symptoms related to it.

Ugh light sensitivity and one spot in the back of my head that consistently hurts.

Feeling cold all over and hot flashes.

Pain in the back of my head behind ear in the same spot that comes and goes.

Already went to the doctor and neg for strep throat, flu and Covid.

Angry bladder and urge incontinence.

I wish they’d rename this shit to something else instead of migraines because of the misunderstanding surrounding the disease. One time I had a flare up when I couldn’t bend my legs or lift my arms above my head. Weakness on half of my body and droopy eyes. I hope it’s not trying to progress to some new bullshit honestly. I’ve even had parts of my face go numb.

I’m noticing a significant improvement on rinvoq of my joint pain and skin. I just wanted to know if anyone else has significantly impaired vision and didn’t think much of it? I have significantly worsened vision in one eye since 2020 and I don’t honestly know when my UC started but I do know I’ve had it and it went untreated for years. I used to wake up with dry bloodshot eyes and dry eyes, or just red eyes. I’ve never thought much of it but I suspect more. I went to the eye doctor and I cannot stand my new eyeglasses. I went back and they are fine supposedly. They sent me to my neuro. But now I’m wanting to see an actual eye subspecialist and someone who my health insurance accepts. I was told it was vestibular migraines and not an eye condition causing my eyes to be blurry and whatnot. I did get a diagnosis of dry eyes and it was written off. I think it could be related to my UC. I went to physical therapy for vestibular issues, and I do not have any. I’m unable to drive or function with the glasses. They make my migraines flare.

I was wondering if it was UC related or autoimmune condition related. I am nearly legally blind. It’s like 100/10, and I have night blindness now.