u/Forsaken-Echidna1297

I’ve tried two different brands when I do so many lymph nodes swell up then shrink some stayed too. very very itchy legs consistently (I do already have histamine Mcas issues but I don’t have this issue this was only when I took colostrum) and I got hot flashes too

reddit.com
u/Forsaken-Echidna1297 — 11 days ago
▲ 2 r/MCAS

Basically I have found this term tonight and I think this is what I have been dealing with the past year with POTS/MCAS. Basically randomly, usually during the night, I can get this extreme feeling of like restless legs syndrome but all of my body. I feel it in my head like I need to hold it, otherwise I will get doom feelings, heart drops, extreme agitation, anxiety. But then I also feel it throughout, like this agitation of needing to confine this feeling. I’m going through the episode rn as we type. All my feet/toes turn red too, vasodilation. I am on histamine meds but titrating it up slowly, and yeah I decided to go get some famotidine and take a bit of that to see if it’s gonna help.

In 30 mins. When I had this really bad though, like start of last year, I had to throw things when I held them, otherwise extreme anxiety. I had to also put my arms in certain positions. I still do this, I think constantly. It’s just when it’s really bad I can’t stretch it out, like it varies, but this is a hella bad episode.

Which honestly I always tried to explain to doctors but they said anxiety. Then I tried SSRIs and I got all these vibrations and buzzing in my chest so I stopped. I really don’t think it’s anxiety. Of course it has symptoms of it but honestly it feels like my whole body is under someone else’s control and it’s not me. And it happens for no reason. There is more to it, like just so much symptoms. This cannot just be POTS. These doctors just… rn I think I need to get benzodiazepines but idek how to explain to the doctor. Like this is probably akathisia bc yeah, it’s just intense, not me. It kinda also feels like TV static in my head, everything is sensory overwhelming. Yeah, horrible. I just want to get prescribed benzos for this to manage it as I’m waiting to move out of this mold house.

reddit.com
u/Forsaken-Echidna1297 — 12 days ago

Basically I have found this term tonight and I think this is what I have been dealing with the past year with POTS/MCAS. Basically randomly, usually during the night, I can get this extreme feeling of like restless legs syndrome but all of my body. I feel it in my head like I need to hold it, otherwise I will get doom feelings, heart drops, extreme agitation, anxiety. But then I also feel it throughout, like this agitation of needing to confine this feeling. I’m going through the episode rn as we type. All my feet/toes turn red too, vasodilation. I am on histamine meds but titrating it up slowly, and yeah I decided to go get some famotidine and take a bit of that to see if it’s gonna help.

In 30 mins. When I had this really bad though, like start of last year, I had to throw things when I held them, otherwise extreme anxiety. I had to also put my arms in certain positions. I still do this, I think constantly. It’s just when it’s really bad I can’t stretch it out, like it varies, but this is a hella bad episode.

Which honestly I always tried to explain to doctors but they said anxiety. Then I tried SSRIs and I got all these vibrations and buzzing in my chest so I stopped. I really don’t think it’s anxiety. Of course it has symptoms of it but honestly it feels like my whole body is under someone else’s control and it’s not me. And it happens for no reason. There is more to it, like just so much symptoms. This cannot just be POTS. These doctors just… rn I think I need to get benzodiazepines but idek how to explain to the doctor. Like this is probably akathisia bc yeah, it’s just intense, not me. It kinda also feels like TV static in my head, everything is sensory overwhelming. Yeah, horrible. I just want to get prescribed benzos for this to manage it as I’m waiting to move out of this mold house.

reddit.com
u/Forsaken-Echidna1297 — 13 days ago
▲ 3 r/MCAS

Mine r triggered from food and mainly Palpations symptoms with heat and doom and just feeling bad .
I currently take vit man c and tirating up ketotfin and I do famotdine/pecid tirating. But is there any other medications or herbal/natural options for when I’m having the reaction to take ?

reddit.com
u/Forsaken-Echidna1297 — 14 days ago