u/Fluid-Post-4837

Image 1 — Surgery photos of my stage 4 endometriosis!
Image 2 — Surgery photos of my stage 4 endometriosis!
Image 3 — Surgery photos of my stage 4 endometriosis!
Image 4 — Surgery photos of my stage 4 endometriosis!
▲ 135 r/Endo

Surgery photos of my stage 4 endometriosis!

My surgeon explained that the stringy parts are the endo sticking my uterus to my ovaries and also to my bowel ! so interesting to look at so I thought I’d share. Additional context is I’m 21 and very active , and I apparently had huge amounts of endo everywhere for someone so young !

u/Fluid-Post-4837 — 1 day ago
▲ 4 r/Endo

Hey guys

I had my lap exactly 5 weeks ago and was diagnosed stage 4 , and I still feel absolutely awful. I’m in pain constantly , I can’t do any of the active stuff I could do before , I’m exhausted all the time and my appetite is insane. I’ve only just gone back to work (I teach kids gymnastics, and have for 2 years ) and I’m also having to mourn the fact I’m going to have to leave this job as soon as possible because it just isn’t sustainable for me anymore.

It’s slowly starting to dawn on me that I just won’t be able to live the same life I did before. I think maybe now knowing I have confirmed stage 4 has helped me recognise that all these symptoms are real so maybe I validate them more than I did before ? I just am feeling very upset and afraid about what my future will look like. I’m only 21 and I want a life long partner and a family and a career and to own a lovely house and I’m so afraid I won’t get to live a long happy life with endo. I had an appointment yesterday where I was told my only option for treatment post surgery is the pill or the mirena coil and I really dont want to go on hormonal pills because of my other pre existing mental health conditions , so if people could reassure me that this may actually be beneficial for me I’d really appreciate it.

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u/Fluid-Post-4837 — 12 days ago
▲ 0 r/Endo

Hi guys !

To get straight to the point , when I hit about 19 my chest size grew at a crazy rate , like B to DD/E type of a change. I struggled to adapt to this sudden change and felt very upset that so many of my clothes didn’t fit anymore and I just felt “bigger”. Now I’m 21 , and in the last couple months out of nowhere my chest has near vanished and I’m back to around a B/C cup, which I thought I’d be happy about but once again I’m having to grasp and get used to a brand new body all over again which is really upsetting.

Even as recent as November or even December 2025 I still fit into my DD/E cup bras and now they all hang off me.

I’m unsure if this is 1000% an endo related thing ? I haven’t been on the pill ever or any other hormonal medication, I had my lap end of March 2026 (diagnosed stage 4) so this change came way before that. I can’t think what else would’ve influenced this change so I wanted to ask if anyone else has had this bizarre experience.

reddit.com
u/Fluid-Post-4837 — 14 days ago