I play on ps5 and all my stuff is on that account. And I will continue using that as a primary account but I was thinking about throwing Fortnite on my switch. Do I just create a new account or can I use my current ps5 account on my switch?
Update: I was going to play since I am in the hospital board (I’m fine) but it says almost 5 hour download. Ha!!! Not happening. Thanks for the help.
At EMU right now. 30 hours in. Nothing on eeg despite tons of events (I get left face side tingling, numbness and sometimes blurry (foggy) eyes, and headache. Tonight they are doing sleep deprivation, lowering meds and hyperventilation. It looks like they think it is too deep to see on eeg which happens. Who knows? What do all of you think? It is annoying because now I am going to get more meds added on or changed. I am currently on Lamictal and she mentioned a ton of options. Thoughts?
Update: I am on hour 51. I was supposed to leave today. I will be here until possibly Sunday. Tonight they are stopping my meds. They haven’t seen anything yet. Doc told me to keep trying everything so wooo, video games, no sleep, getting stressed.
Today I realized how little I think about eating. I always analyzed everything. Today I ordered a normal diner breakfast special and ate the eggs; only one sausage link and a piece of toast with some jelly along with a few bites of hash brown. That was it. In the past I would have eaten all the hash browns , both slices of toast and all 3 sausages along with a side of fruit. I did take the two extra links of sausage with me (lol, left over feelings of needing to clean plate at a restaurant).
Long message to say how happy I am to just be able to eat.
I am wondering if this is part of my focal coming on (because I start getting my normal tingling after). I get a feeling of faintness and then a bit after I get my seizure symptoms. I am just wondering if it could just be hunger but it is odd it happened (twice) before my seizure activity. On another note checking into EMU in the morning so I hope it keeps coming. Lol
So it looks like I made my ps5 controller get stick drift. The poor thing. I guess it is going to get replaced.
Hi! I have a 3 day EMU visit at Lenox Hill Hospital in Manhattan. I was wondering what all of you suggest I bring. So far from looking on this and other groups I know the following:
Button down shirt
Underwear
Computer
Switch
Phone
Cords
Toiletries
I am also going to bring bath sponges I have from past surgeries.
Does it make sense to bring pj pants or do they make you wear a gown?
Finally, does anyone have a recommendation for a head covering for when I leave?
For the life of me I don’t know how to ping an object. I am on ps5 remote. I am trying to do the quest where you ping items of different rarities. Somehow I accidentally manage to ping 2/3. . 😂. Any help on this quest.
Btw I gave up on the ride on someone shoulders.
I had an anterior parasagittal mengionoma found next to the sinus in 2018 after being rear ended. The tumor board at MSK was split on taking it out. I had no symptoms that I knew of. The tumor board was split on watch and wait or surgery. I chose surgery and the surgeon was happy afterwards because he said it was beginning to be covered in nerves.
Anyway a few days after surgery I had a partial awareness left body seizure (body went numb while sitting). Then I had a full aware seizure where I had to drag myself to get help a few days later. I went to the local hospital and after stroke protocol decided h might have a brain bleed. They called my docs at msk and they said that the local docs were nuts and gave me a fun ambulance ride to manhattan. They said it was scar tissue and I was put on keppra. After wanting to kill someone I was taken off and put on lamictal. Over the years I have just had left side of my face tingling and numbness which they call focal seizures. I have had multiple eegs that show nothing. I mean really you have to have the exact issue while having the test. I am not in 600 mg of lamitcal which I just went up to a month ago. I have been having these seizures more often and they last a long time. Last week I had to go to the ED because they wouldn’t go away despite two doses of Ativan. It was miserable. Now they want to send me to an inpatient test.
So I am wondering if there are any others that are having the same issues and what is happening to you. I feel so alone and I am terrified that these keep getting worse. I am hoping they find that they aren’t seizures but then what the hell are they. Thanks
Do any of you get what feels like rubber bands around your calves or other part of the body? I have been blaming my lower left numb toe and this bandaid feeling around my calf and tingling in my lower leg on my back issues. And it could be. But I have been noticing they sometimes occur at the time of what has been identified as left face focal seizures. I’m having an inpatient monitoring in a few weeks and I am hoping to get to the bottom of this but looking for experiences of other people. Thanks.