u/Flimsy_Apple_1921

Hi all - i need some advice. I met with a neurologist for the first time since I had a brainstem surgery in 2012. I presented with mcas/pots symptoms and my obgyn with a Heds specialty is concerned about EDS and Chiari. I have an MRI scheduled. I am trying to understand if Chiari type 1 (because of dva) and vEDS (due to venous fragility) with some type of cervical component could explain my life long symptoms? I am shaking with fear. 15 years ago I had brain surgery and I was never the same. I score 6/9 on beighton scale. Thin fair skin with vain fragility. Bruise easily. Always weight fluctuating, but thin. Chronically fatigued along with hundreds of other symptoms. Is my brainstem dva the same as Chiari? Need understanding of the reasonability in the comorbidity of VEDS, Chiari 1, and dva Brainstem vascular malformation hemorrhage.