u/Flat_Baker_8028

Anyone else experience cataplexy with sobbing/crying?

Hello! This is my first reddit post, so please excuse any faux pas.

I have an upcoming follow up with my sleep Dr to go over my Modafinil dosage. I currently have a diagnosis of persistent hypersomnia with OSA becuase I did my sleep study without stopping my SSRI. On my sleep study my latency would get longer with every nap, unfortunately putting me barely past qualifications for an N2 or IH diagnosis. Luckily, my Dr actually has IH and his experience inspired him to change his specialty to sleep. So he is on my side in this diagnostic hellscape.

In my past appointments, I have maintained that I have not experienced cataplexy symptoms, but after reading the posts here and your experiences, I'm thinking I might have experienced some instances of cataplexy.

The only example I can recall that has happened more than once is during intense sobbing/crying. I have noticed that seemingly in the middle of sobbing, I feel like I "switch off". I zone out, stop crying, eyes glaze over. I cant recall if my face droops. But then, I feel like I "snap back" into it and start crying really hard again. The more memorable times this has happened, I was being held by my partner, so they were holding me up and I'm not sure if I slouched. I also have some mental health diagnosis and trauma, so I was also unsure if it was dissociating vs cataplexy.

I'm not looking for confirmation of symptoms or a diagnosis of cataplexy, since I know that is against the rules. Just looking to see if anyone else has had a similar experience so I know whether or not it is worth mentioning to my Dr.

And I also wanted to say thank you to the sub for providing me with resources and shared experiences that have made me feel a little less alone 🩷

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u/Flat_Baker_8028 — 2 days ago