PPROM at 16w5d with Twins - How long did you make it?
Hi all, it's been a wild ride with our di/di twins so far and I'm looking for other parents who have experienced PPROM (and/or oligohydramnios) for advice and support.
Our twins are di/di conceived with IVF and we have had concerns about Baby B from the start, as she had a noticeably smaller gestational sac than Baby A and always measured behind. I had two SCH bleeds but the babies seemed unbothered by this (as did the hospital honestly).
At 12 weeks oligohydramnios was confirmed for Baby B while Baby A looked completely appropriate in growth and fluid. Triploidy or placental insufficiency were discussed as the causes and we were told she had no chance of survival due to lack of fluid for lung development. Selective reduction was discussed but not necessary at this stage.
At 16w5d I PPROM'd with a gush of fluid and blood and was admitted to hospital, with a suspected leak from Baby B's sac. The first doctor we saw scared the life out of us saying I likely had an infection and we would need to terminate - no infection was present and we opted for expectant management.
I've had small fluid leaks since then but on my most recent scan at 18w4d both babies have grown (40th and 7th percentile) and I'm still infection free, oligo still present for Baby B. Triploidy has now been ruled out for Baby B and placental insufficiency is suspected as she is developmentally normal other than the oligo causing a bell shaped chest and FGR.
At the moment our MFM team are hesitant to commit to anything until we get to 24 weeks/500g. I'm being scanned fortnightly until then and weekly after we hit this milestone, and have essentially been told to go home expecting to leak fluid and hope that I don't get an infection. The possibility of survival for Baby B has now gone from zero to a big fat question mark given the lack of triploidy, but they have been honest about the risk of pulmonary hypoplasia. They are now hesitant to reduce Baby B given the instability in my uterus.
I'm feeling so daunted by needing to hold on for another five weeks before my babies even have a chance at life - we love them so much already and I'm terrified of going into labour any time now. I'm trying to rest, drink more fluids, and stay positive - how did you manage, and how did things turn out? 🌈